We are a nonprofit consumer advocacy and service organization founded in 1990 to help meet the vast education and support needs of the bleeding disorders community in Nevada. In July of 2011 we merged with the National Hemophilia Foundation to provide the best possible programs and support to the community. The Nevada Chapter of the National Hemophilia Foundation is committed to maintaining the commitment of our founder Renee Paper.
Bleeding disorders are life-threatening, debilitating, and expensive to treat. A child with severe Hemophilia will spend over $200,000 annually to prevent bleeding. Some children and adults build up inhibitors to the treatment and the costs can exceed $1,000,000 per year. Failure to preventatively treat the disorder can result in prolonged painful bleeds that cause permanent and severe damage. Access to affordable and adequate health care is critical to being a self-sufficient, contributing member of society.
The entire family is affected by the bleeding disorder physically, emotionally, and financially. With over 35 years of experience, we provide programs and services to people affected by bleeding disorders so that they can better cope and can become self-advocates for themselves and/or their family. We partner with the Hemophilia Treatment Center of Nevada, other agencies, and medical professionals to provide programs and services unique to those with bleeding disorders to best meet their needs.
The Nevada Chapter's 2021-2023 Strategic Plan
The Nevada Chapter's leadership conducted an in-depth analysis of the our ability to meet the needs of the bleeding disorders community. The process included opportunities for stakeholders to offer input, needs assessments of the community we strive to serve, and deep dives into our strengths and challenges. In order to help set the course for high impact in pursuit of our mission, the NHFNV Board of Directors set the following strategic focus areas:
- Grow Leadership
- Diversify Revenue
- Enhance Communication
- Increase Impact
Click Here to see the full plan with the specific objectives under each focus area.
Annual Needs Assessment
Each year NHFNV asks the community we serve to take a 10 minute survey that offers insight into the needs of the community, how well our programs are meeting the needs, and what our focus areas for education and support should be going forward. The 2020 Survey was issued in January 2021 and received a 25% response rates. The assessment identified the following top five areas for education:
- Bleeding Disorders 101: Back to Basics
- Social & Emotional: Coping Skills & Support
- Medical: Navigating Care & Treatments
- Youth Education & Support
- Understanding Insurance
To see the full assessment results Click Here.
Chapter's Mission Statement
The Nevada Chapter of the National Hemophilia Foundation is dedicated to finding cures for inheritable blood disorders and addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.
Chapter's Vision Statement
Our vision is a world without inheritable blood disorders.
National Hemophilia Foundation's Mission
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.
Established in 1948, the National Hemophilia Foundation has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).
We were founded out of a need to raise awareness for voices not heard. We have continued to make a difference with the help of our donors and volunteers that make our mission possible. We look forward to your partnership as, together, we improve the lives of people with bleeding disorders.