We are a nonprofit consumer advocacy and service organization founded in 1990 to help meet the vast education and support needs of the bleeding disorders community in Nevada. In July of 2011 we merged with the National Hemophilia Foundation to provide the best possible programs and support to the community. The Nevada Chapter of the National Hemophilia Foundation is committed to maintaining the commitment of our founder Renee Paper.
Bleeding disorders are life-threatening, debilitating, and expensive to treat. A child with severe Hemophilia will spend over $200,000 annually to prevent bleeding. Some children and adults build up inhibitors to the treatment and the costs can exceed $1,000,000 per year. Failure to preventatively treat the disorder can result in prolonged painful bleeds that cause permanent and severe damage. Access to affordable and adequate health care is critical to being a self-sufficient, contributing member of society.
The entire family is affected by the bleeding disorder physically, emotionally, and financially. With over 35 years of experience, we provide programs and services to people affected by bleeding disorders so that they can better cope and can become self-advocates for themselves and/or their family. We partner with the Hemophilia Treatment Center of Nevada, other agencies, and medical professionals to provide programs and services unique to those with bleeding disorders to best meet their needs.
Chapter's Mission Statement
The Nevada Chapter of the National Hemophilia Foundation's mission is to improve the quality of care and life for people with hemophilia, von Willebrand disease and other inherited bleeding disorders through education, peer support and advocacy.
Chapter's Vision Statement
Our vision is to be the go to resource for people with bleeding disorders in Nevada by providing all the resources needed to successfully manage their quality of life.
National Hemophilia Foundation's Mission
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.
Established in 1948, the National Hemophilia Foundation has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).
We were founded out of a need to raise awareness for voices not heard. We have continued to make a difference with the help of our donors and volunteers that make our mission possible. We look forward to your partnership as, together, we improve the lives of people with bleeding disorders.