We are a nonprofit consumer advocacy and service organization founded in 1990 to help meet the vast education and support needs of the bleeding disorders community in Nevada. In July of 2011 we merged with the National Hemophilia Foundation to provide the best possible programs and support to the community. The Nevada Chapter of the National Hemophilia Foundation is committed to maintaining the commitment of our founder Renee Paper.
Bleeding disorders are life-threatening, debilitating, and expensive to treat. A child with severe Hemophilia will spend over $200,000 annually to prevent bleeding. Some children and adults build up inhibitors to the treatment and the costs can exceed $1,000,000 per year. Failure to preventatively treat the disorder can result in prolonged painful bleeds that cause permanent and severe damage. Access to affordable and adequate health care is critical to being a self-sufficient, contributing member of society.
The entire family is affected by the bleeding disorder physically, emotionally, and financially. With over 35 years of experience, we provide programs and services to people affected by bleeding disorders so that they can better cope and can become self-advocates for themselves and/or their family. We partner with the Hemophilia Treatment Center of Nevada, other agencies, and medical professionals to provide programs and services unique to those with bleeding disorders to best meet their needs.
The Nevada Chapter of the National Hemophilia Foundation's mission is to improve the quality of care and life for people with hemophilia, von Willebrand disease and other inherited bleeding disorders through education, peer support and advocacy.
Our vision is to be the go to resource for people with bleeding disorders in Nevada by providing all the resources needed to successfully manage their quality of life.