State advocacy days are one of the major highlights of local chapter advocacy programs. NHF Nevada's State Advocacy Day occurs in odd numbered years and includes volunteer representatives from the entire state of Nevada. Volunteer representatives include individuals with a bleeding disorder and/or their families members, community volunteers and other organizations. We come together to host a day at the state capitol. The event usually consists of a training session where we provide talking points and engage in role-playing activities. Training is followed by a day at the capitol where volunteers meet with their elected officials to educate them about hemophilia, von Willebrand disease and other related bleeding disorders. Constituents may visit representatives for various reasons, including to educate them, build relationships, thank them, and advocate for or against a piece of legislation.
State advocacy days give elected officials the opportunity to learn firsthand from affected individuals and families how expensive treating bleeding orders can be, and how important it is to have access to comprehensive care and continuity of care. Legislators learn how not having access to the proper treatment can be detrimental to the health of someone with a bleeding disorder, and potentially cost the state a lot of money in the long run.
2021 Nevada Advocacy Day
Registration Form Due 1/31: All candidates must COMPLETE THIS REGISTRATION FORM to be eligible to participate in the Nevada Advocacy Days
Please read the following information to understand the goals and process:
- Our goal is to have at least 20 individuals from across the State participate. Participation will be via zoom. Selected individuals will be notified by February 1st. All individuals seeking to participate in Nevada Advocacy Days (March 15-19, 2021) must submit a form so that we can start the process of scheduling appointments with their representatives.
Selection Criteria: The Nevada Chapter’s Advocacy Committee will be drafting talking points for the NV Advocacy Day that focus on key issues effecting access to care and targeting key decision makers within the legislature. Individuals will be prioritized for participation based on:
· Participation in advocacy trainings held throughout the year in 2020 & 2021
· Advocacy story that highlights issues included in talking points
· Constituents of targeted elected representatives (Live in the district of a key decision maker)
Mandatory Trainings: February 10th, 17th & 24th at 4 pm - 5 pm