This camp is open to ten (10) NV Chapter campers (diagnosed patients and unaffected siblings) who will be 14 to 18 years of age at time of camp.

NV Chapter Camp teens will have the opportunity to experience the excitement of a rafting adventure on the South Fork of the American River with San Diego County Hemophilia Association's Camp Dragonfly camp community.

Camp Dragonfly provides teens with the tools they need to overcome the challenges presented to them by their disorder as well as connect with peers, gain leadership skills, test personal limits and the opportunity to commune with nature. By attending Camp Dragonfly, campers will experience camping and an outdoor program which challenges at both the individual and group levels. Come experience the beauty of the South Fork and the excitement and challenge that comes with whitewater rafting. This is a memorable adventure, perfect for those who have spent time on the river before or novice paddlers.

Professional medical staff from Rady Children’s Hospital Hemophilia & Thrombosis Treatment Center are on site for duration of the camp program.

Participants will be camping for five days and four nights at the ETC (Environmental Traveling Companions) River Camp’s riverfront property located in Lotus, CA. Along with rafting, participants will be sleeping under the stars (tent optional), cooking all meals in their full outdoor kitchen, enjoying group activities and nightly campfires. Please note: there will be accessible bathrooms but no showers.

This camp is at no cost for our qualified community members. Space is limited and dependent on timely completed medical documentation for every camper.

Takeda will be hosting an education session about how Women Matter in Bleeding Disorders.

Join us with Takeda to have a great conversation about how Women Matter in Bleeding Disorders. Women with bleeding disorders face unique challenges that are often unrecognized or underappreciated. They will go over the topic so that we can understand some of the special challenges faced by women with bleeding disorders and identify options for emotional support within the community.

By registering for this event, you are agreeing that all family members will wear a mask, will not attend if they are symptomatic, and either be fully vaccinated or have received a negative COVID test result in the past 72 hours.

If you have any questions please feel free to reach out to Mariana.

Takeda organizará una sesión educativa sobre la importancia de las mujeres en los trastornos hemorrágicos.

Únase a nosotros con Takeda para tener una gran conversación sobre la importancia de las mujeres en los trastornos hemorrágicos. Las mujeres con trastornos hemorrágicos se enfrentan a retos únicos que a menudo no se reconocen o se subestiman. Repasarán el tema para que podamos entender algunos de los retos especiales a los que se enfrentan las mujeres con trastornos hemorrágicos e identificar las opciones de apoyo emocional dentro de la comunidad.

Al inscribirse en este evento, usted está de acuerdo en que todos los miembros de la familia llevarán una máscara, no asistirán si son sintomáticos, y estar completamente vacunados o han recibido un resultado negativo de la prueba COVID en las últimas 72 horas.

Si tiene alguna pregunta, no dude en ponerse en contacto con Mariana.

Summer Fest 2022- Over the Rainbow in ELKO, NEVADA

Registration is open until June 27th! Be sure to register soon to secure hotel accommodations.

The Elko Summer Fest 2022 is a free event for members of our Nevada Chapter bleeding disorders community. We seek to gather together, to learn and share from one another, and gain tools and insight to allow us to explore and challenge ourselves above and beyond. We look forward to celebrating you all!

Travel Grant Gas Stipends, and Room Accommodations available for those traveling over 50 miles round-trip.

*****EVENT OVERVIEW*****

> Friday Evening: Arrivals, and Elko Convention Center event registration begins at 5pm with dinner provided, and a free family bowling outing at 7:30pm - 9:30pm.

> Saturday: Enjoy a grab bag breakfast at hotel, also an 8am coffee bar at the Elko Convention Center will be open with education sessions beginning at 9am. Our schedule will offer plenty of time for families to learn and play together. Lunch & Dinner will be provided, and an all day snack & refreshment table. We are excited to provide specialized programming for adults, children, and teens throughout Saturday with plenty of fun time at the park, free-time to enjoy Elko's area attractions, while ending our day with a sunset picnic and lawn & water games.

Here is a snapshot of just some of our planned programming through Sunday.

Adult Programming: Mental Health Wellness, Women's Health Education, Art Therapy, Men's Group Lounge

Family Programming: Storytelling, Art Therapy, Family Yoga, Infusion Workshop

Children & Youth: Kid's Day Camp Programming (12 & under*), Teen Leading Edge Program w/ Gut Monkey (13 & up*), City Park Scavenger Hunt, and Kid's Bingo *age grouping are tentative and may be subject to change

> Sunday: Again begins with grab-bag breakfast at the hotel and an 8am coffee bar at the Elko Convention Center. Sessions begin at 9am. We'll carry out any additional programming, have a closing celebration, backpack take-aways, good-byes, and a boxed lunch to enjoy on-site, at the park, or for the road all ending by 11:30am.

Let's talk camp!
Our 2022 NV Chapter camp was put on hold this year, yet that doesn't mean that we've stopped planning.
Building a brand new camp culture and community cannot happen without you. Whether you love camp, or even the idea of camp, we want to hear from you.
We are offering opportunities both virtual and in-person (currently Las Vegas) for our community to share their ideas, hopes, and dreams of camp. We really want to hear from everyone from you; our campers and future campers, family members, volunteers, and any camp stakeholders that want to chat with us about camp. Check out our schedule and sign-up to spark some ideas for 2023.

Join us as we celebrate the end of summer and race into a new school year! The Nevada Chapter of NHF will be hosting this fun Back to School event at the Las Vegas Mini Grand Prix where we can enjoy go-karts, rides, and games before a lunchtime pizza buffet.

Thank you to HTC Nevada for sponsoring this fun community event. Information about Individualized Education Plans and 504 Plans will also be provided by our education professionals.

All registered school-aged children will receive a free backpack and supplies for the new school year.

Let's talk camp!
Our 2022 NV Chapter camp was put on hold this year, yet that doesn't mean that we've stopped planning.
Building a brand new camp culture and community cannot happen without you. Whether you love camp, or even the idea of camp, we want to hear from you.
We are offering opportunities both virtual and in-person (currently Las Vegas) for our community to share their ideas, hopes, and dreams of camp. We really want to hear from everyone from you; our campers and future campers, family members, volunteers, and any camp stakeholders that want to chat with us about camp. Check out our schedule and sign-up to spark some ideas for 2023.

Unite for Bleeding Disorders Walk
Las Vegas, NV – Floyd Lamb Park
October 8th, 2022 – Event begins at 10AM, Check-in begins at 9 AM

https://www.uniteforbleedingdisorders.org/event/LasVegasWalk2022

Please consider starting a team, joining an existing team, or making a donation.

This event is about more than just fundraising – This is a day to celebrate our bleeding disorders community and everyone who supports it! It is a day to come together and celebrate each other, support each other, and share a beautiful day together!

It is more important than ever to Unite with your bleeding disorders community. The money raised at this event will be used to support the many programs and services we provide to the bleeding disorders community throughout the State of Nevada. These programs include emergency financial assistance (extremely vital during the COVID pandemic!), education program, advocacy, summer camps, and more!