State advocacy days are one of the major highlights of local chapter advocacy programs. NHF Nevada's State Advocacy Day occurs in odd numbered years and includes volunteer representatives from the entire state of Nevada. Volunteer representatives include individuals with a bleeding disorder and/or their families members, community volunteers and other organizations. We come together to host a day at the state capitol. The event usually consists of a training session where we provide talking points and engage in role-playing activities. Training is followed by a day at the capitol where volunteers meet with their elected officials to educate them about hemophilia, von Willebrand disease and other related bleeding disorders. Constituents may visit representatives for various reasons, including to educate them, build relationships, thank them, and advocate for or against a piece of legislation.
State advocacy days give elected officials the opportunity to learn firsthand from affected individuals and families how expensive treating bleeding orders can be, and how important it is to have access to comprehensive care and continuity of care. Legislators learn how not having access to the proper treatment can be detrimental to the health of someone with a bleeding disorder, and potentially cost the state a lot of money in the long run.
Putting a face to bleeding disorders makes a significant impact.
More information regarding the Nevada's 2019 State Advocacy Day Coming Soon! If you are interested in representing NHF Nevada at our next State Advocacy Day, please contact us.