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The Advocacy Boot Camp is required for all those traveling to Carson City for the State Advocacy Day in February - but is open to anyone interested in learning more about how to be an effective advocate, understand the legislative process,and learn about the Nevada Chapter's advocacy initiatives for 2019. There is a separate game-based kids session for youth ages 5-12 to help them learn about advocacy. Limited to the first 45 registrations.
Come Sip, Shop and Support NHF Nevada. We will have food, wine and awesome silent auction items for you to bid on. Early Bird registration through November 30, 2018 is only $25! After that, tickets are $30 in advance, $35 at the door! A custom-made NHF Wine Glass is included in ticket price. No refunds.
The Winter Wine Fest is a wine tasting event hosted by the Nevada Chapter of the National Hemophilia Foundation (501c3 Nonprofit Organization Tax ID 13-5641857) to raise funds for the Nevada bleeding disorders community. 100% of the proceeds stay in Nevada and support our programs and services improving the quality of life and care of families living with bleeding disorders. With over 200 attendees, the Winter Wine Fest is a fun opportunity to sip and socialize, while supporting a great cause.
Winter Family Fun Day - Details coming soon
State advocacy days are one of the major highlights of local chapter advocacy programs. NHF Nevada's State Advocacy Day occurs in odd numbered years and includes volunteer representatives from the entire state of Nevada. Volunteer representatives include individuals with a bleeding disorder and/or their families members, community volunteers and other organizations. We come together to host a day at the state capitol. The event usually consists of a training session where we provide talking points and engage in role-playing activities. Training is followed by a day at the capitol where volunteers meet with their elected officials to educate them about hemophilia, von Willebrand disease and other related bleeding disorders. Constituents may visit representatives for various reasons, including to educate them, build relationships, thank them, and advocate for or against a piece of legislation.
State advocacy days give elected officials the opportunity to learn firsthand from affected individuals and families how expensive treating bleeding orders can be, and how important it is to have access to comprehensive care and continuity of care. Legislators learn how not having access to the proper treatment can be detrimental to the health of someone with a bleeding disorder, and potentially cost the state a lot of money in the long run.
Putting a face to bleeding disorders makes a significant impact. If you are interested in representing NHF Nevada at our next State Advocacy Day, please fill out the form below and send as soon as possible. Last day to apply December 15, 2018.
Spring Education Fest brings together families from the Southern Nevada Community for a day of education and fun. Attendees will spend time visiting the exhibit booths and will select from English and Spanish education sessions. The youth who attend will have separate education opportunities as well as participating in fun activities.
Golf Gets in Your Blood - Nevada Hemophilia Foundation Golf Tournament
Our golf tournament is being held at one of Las Vegas’ most stunning private golf courses, The Mountain Course at Red Rock Country Club. It offers incredible desert views and a challenging course for the most seasoned golfer. Our goal for Golf Tournament is to raise funds for the life-saving treatment and educational and outreach efforts for those with life-threatening inherited bleeding disorders. All proceeds will benefit Nevada families.
Registration begins 8 am, with a Shotgun Start at 9:30 am. There will be a Longest Drive Contest, Closest to the Pin, Putting Contest & More. Lunch provided, raffle, and awards reception following tournament. A $50 Taylor Made club rental option is available. Our tournament is limited to 144 golfers so register today!
Available sponsorship and individual levels include:
$10,000 - Presenting Sponsor (1 available)
• Sixteen Golf Positions, Two Drink Tickets per Golfer, Sixteen Passes to Reception/Sixteen Super Tickets, Two Tee Signs, Reception Sponsor, Logo on, Tournament Printed Material, Press Release, and Website, Logo on both Foundations Website & Newsletters
$7,500 - Gold Sponsor (2 available)
• Twelve Golf Positions, Two Drink Tickets per Golfer, Twelve Passes to Reception/Twelve Super Tickets, One Tee Sign, Logo on Tournament Printed Material, Press Release, and Website, Logo on both Foundations Website & Newsletters
$5,000 - Silver Sponsor (4 available)
• Eight Golf Positions, Two Drink Tickets per Golfer, Eight Passes to Reception, Logo on Tournament Printed Material, Website
$3,500 - Bronze Sponsor (4 available)
• Four Golf Positions, Two Drink Tickets per Golfer, Four Passes to Reception, Logo on Tournament Printed Material, Website
$2,000 – Lunch Sponsor
• Includes Logo on Lunch Boxes and Logo on Golf Carts
$200 Hole Sponsor
• Includes Tee Sign
$800 - Foursomes
• Two Drink Tickets per Golfer, Four Passes to Reception
$250 - Individual Golfer
• One Drink Ticket, One Pass to Reception
$75 – Contest Super Ticket
• Includes entry into course contests and specialty holes