Event Calendar

You’ll always know what’s going on with NHF Nevada.

Just bookmark this page and check back often for the latest programs and events.

Las Vegas Unite for Bleeding Disorders Walk

Saturday, September 21, 2019
8:00 am11:30 am
Floyd Lamb Park at Tule Springs:9200 Tule Springs Rd, Las Vegas, NV 89131
Las Vegas Unite for Bleeding Disorders Walk

The Nevada Chapter of the National Hemophilia Foundation's 2019 Las Vegas Unite for Bleeding Disorders Walk
Saturday, September 21, 2019
Floyd Lamb Park at Tule Springs
9200 Tule Springs Rd, Las Vegas, NV 89131
Registration begins at 8am. Walk begins at 9am.

The funds raised at this event will be used to assist our overall mission to improve the quality of care and life for people with hemophilia, von Willebrand disease, and other inherited bleeding disorders through education, peer support, and advocacy.

We can't do this walk without you! Please create a team and have your family, friends, neighbors, co-workers and anyone else you know help you not only raise funds but also raise awareness for hemophilia and other bleeding disorders. If someone you know has already created a team, join their team and support them! And if you can’t make it to the Walk, you can still support it by creating a virtual team! Please spread the word to support the important work that chapters like us and other chapters across the country do for those affected with bleeding disorders!

PARTICIPANTS WHO MAKE A $25 MINIMUM DONATION WILL RECEIVE A UNITE FOR BLEEDING DISORDERS T-SHIRT

We hope you'll join us at Floyd Lamb Park on September 21!

Thank you for your support!

Las Vegas - Latinos Unidos Almuerzo

Saturday, September 28, 2019
11:00 am3:00 pm
Allure Gardens Banquet Hall 5555 W Charleston Blvd Las Vegas, NV 89146
Las Vegas - Latinos Unidos Almuerzo

Reno - Women's Retreat 2019

Saturday, October 12, 201911:00 amSunday, October 13, 201912:00 pm
Renaissance Reno Downtown Hotel One South, Lake St, Reno, NV 89501
Reno -  Women's Retreat 2019

Join us for a retreat focused on women’s needs in the bleeding disorders community. Whether you are affected or a caregiver, learn about how to take care of yourself during this weekend of rest, relaxation, learning and recharging. You will find plenty of opportunity to rediscover ways to have fun and increase awareness of the larger support networks that are available to you. We will offer programs designed to further your understanding of bleeding disorders, live positively and develop a support network.
Space is limited to 30 women
This program is open to women age 16 and older that have a bleeding disorder or are caregivers of persons with bleeding disorders. Unfortunately, we are unable to provide childcare. The chapter has a limited number of travel assistance grants available for those that qualify if you are traveling from outside the Reno area.
Double occupancy hotel rooms will be available at no cost to meeting attendees that would like to stay Saturday night.

Product Dinner Round Robin

Saturday, October 19, 2019
2:00 pm9:00 pm
The Orleans Convention Center - 4500 W Tropicana Ave, Las Vegas, NV 89103
Product Dinner Round Robin

Register now to reserve your spot to learn about available products to treat your disorder in a fun, interactive, progressive dinner format. 

Session 1: Hemophilia B, Inhibitors, Factor 7, Factor 13, Platelet Disorders
2 pm - 5 pm
Enjoy a selection of appetizers as you move through 20 minute chat sessions with manufacturers to learn about products and get your questions answered.

Dinner & Exhibits
5 pm - 7 pm

Learn about what you should know when considering products in your treatment and important information on navigating your relationship with manufacturers, pharmacies and home care safely. 

Session 2: Hemophilia A, Von Willebrand Disease
7 pm - 9 pm
Enjoy a selection of desserts as you move through 20 minute chat sessions with manufacturers to learn more about products and get your questions answered. 

Reno - Sanofi Educational Program & Dinner

Wednesday, November 6, 2019
6:00 pm8:00 pm
TBD
Reno - Sanofi Educational Program & Dinner

Navigating the Insurance Landscape
Need help trying to understand many of your insurance options in order to ensure you select the right health coverage for you and your family? We’ll discuss the different types of insurance plans as well as define important terminology that will help you evaluate the options. We’ll also help you uncover important considerations so you are better prepared to select your plan.

Las Vegas- Takeda Educational Program & Dinner

Wednesday, November 6, 2019
6:00 pm8:00 pm
TBD
Las Vegas- Takeda Educational Program & Dinner

VWD Focused
More details coming soon

Gettin' in the Game

Friday, November 8, 2019Sunday, November 10, 2019
Phoenix, AZ
Gettin' in the Game

Do you like baseball, golf or swimming*? Are you between the ages of 7–18 and have a bleeding disorder? Would you like to travel to Phoenix, AZ for a weekend of baseball, golf or swim clinics for FREE? If you have answered yes to the questions above, “Gettin’ in the Game” Junior National Championship presented by CSL Behring may be for you!

NHF Nevada can nominate two youth, for either baseball, golf, or swimming* for this program. CSL Behring will pay all travel costs and meals for the patient and one caregiver. A caregiver must accompany child.

NHF Nevada will hold an essay contest for all who qualify and would like to participate. If you interested in attending the “Gettin’ in the Game” program submit an essay on one of these topics:
What lessons have you learned through your experience of having a bleeding disorder or how have you given back to the bleeding disorder community?
Please indicate if you are interested in the baseball, golf or swimming* program. Include your name, age, diagnosis, address, phone number, email address, and your parent or guardian’s name.

*Swimming participants must be able to swim 25 yards without assistance (no stopping or holding onto walls etc.)

Deadline to submit your essay is July 25th 2019

Mail to
NHF-NV, Gettin’ in the Game Essay Contest
222 S. Rainbow Blvd Suite 203
Las Vegas NV 89145

PEP 1 & 2

Friday, November 8, 2019Sunday, November 10, 2019

Dates: November 8 through November 10, 2019
Start time on first day: 6 pm
Location: J W Marriott 221 N Rampart Blvd. Las Vegas, NV 89145
Host: Hemostasis and Thrombosis Center of Nevada
To register, contact: Maria Reyes
Phone: (702) 330-0555
Email: maria.reyes@htcnv.org

Parents Empowering Parents or PEP1 is a unique 2.5 day program that provides
valuable conversations, exercises and tools for parents of children (ages: birth to
12 years old) with bleeding disorders.
PEP1 teaches participants how to be “the parent” and raise their children to
become independent, capable, and productive adults while living with their
bleeding disorder.
The PEP1 program includes interactive sessions and materials on …
• Learning about the typical stages of childhood development
• Embracing your “new normal”
• Managing self-esteem - for your child and yourself
• Being aware of the impact of your parenting style
• Dealing with thoughts, feelings and emotions
• Communicating more effectively

Parents Empowering Parents – Transition or PEP2 is a unique 2.5 day program
that provides valuable conversations, exercises and tools for parents of teens
(ages: 12 years old and older) with bleeding disorders.
PEP2 teaches participants how to be “the parent” and empower their teens to
become independent, capable, and productive adults while living with their
bleeding disorder.
The PEP2 program includes interactive sessions and materials on …
• Learning about the teen brain and mindset through puberty
• Managing self-esteem - for your teen and yourself
• Being aware of the impact of your parenting style
• Dealing with thoughts, feelings and emotions
• Communicating more effectively
• Navigating topics like sex, tattoos, alcohol, bullying and career planning
• Creating time for your own self-care

Las Vegas - Adulting 101 Teen Dinner

Friday, November 15, 2019
5:00 pm8:00 pm
Nevada Chapter of NHF - 222 S. Rainbow Blvd Suite 203 Las Vegas NV 89145
Las Vegas - Adulting 101 Teen Dinner

Las Vegas - Adulting 101 Teen Dinner

Bikes in Your Blood

Saturday, November 16, 2019
7:00 am11:00 am
Equestrian Park South
Bikes in Your Blood

REGISTRATION PAGE COMING SOON!

Where: Ride starts and finishes at Equestrian Park South, 1298 Equestrian Dr, Henderson, NV 89015

Route: River Mountains Loop Trail

Date: Saturday, November 16th, 2019

Start times:
36 Mile Ride: 7 AM
14 Mile Ride: 8 AM
7 Mile Ride: 9 AM

Bikes in Your Blood offers riders at any fitness level the opportunity to participate. The start/finish line will be from Equestrian Park South in Henderson, NV and the course will span the River Mountains Loop trail in Lake Mead National Recreation Area. The River Mountains Loop Trail is Nevada’s first endeavor of its kind.This non-motorized trail provides Nevada residents and out-of-state visitors with an outdoor recreation area offering scenic views, plentiful wildlife and the vast beauty only the Mojave Desert can offer.

The 3 routes for Bikes in Your Blood were designed for riders of all experience levels. Beginner cyclists will enjoy a short scenic ride while experienced cyclists will find a longer more challenging ride on River Mountains Loop. Bikes and helmets not provided. All routes run along cycling friendly roads.

Registration is FREE but donations are encouraged! If you donate at least $25 you get an exclusive Bikes in Your Blood t-shirt!

Annual Family Conference and Holiday Celebration

Saturday, December 7, 2019
10:00 am5:00 pm
The Orleans Convention Center - 4500 W Tropicana Ave, Las Vegas, NV 89103
Annual Family Conference and Holiday Celebration

Please join us for a day of fun, education, food and holiday cheer! The Annual Family Conference is taking place at a new location this year: The Orleans Convention Center. There will be a photo booth and a visit with Santa! We have some fabulous speakers that will be presenting topics in both English and Spanish. We will also have our annual raffle with proceeds benefiting our youth programs including Camp Independent Firefly!
• Space is limited – only people living in the state of Nevada with a bleeding disorder and their immediate families, living in the same household, are invited to attend.
• Table Centerpiece Contest! We are asking each family to bring a holiday themed centerpiece for the table. One centerpiece will be selected and the designer will receive a $50 gift card.
• We are in need of raffle items and donated presents or gift cards valued at $10 or more. If you can donate please contact us at mmagana@hemophilia.org.

Elko Holiday Gathering

Wednesday, December 11, 2019
6:30 pm8:00 pm
Hilton Garden Inn, Elko, NV
Elko Holiday Gathering

Join us at the Hilton Garden Inn in Elko, NV for a fun, family gathering to celebrate the holidays with your bleeding disorders family!

Reno Holiday Gathering

Thursday, December 12, 2019
6:30 pm8:00 pm
Hunsberger Elementary School
Reno Holiday Gathering

Join us for a fun, family gathering to celebrate the holidays with your bleeding disorders family!

Winter Wine Fest

Friday, February 7, 2020
6:00 pm9:00 pm
Brio Tuscan Grille at Town Square 6653 S.Las Vegas Blvd., Las Vegas, NV 89119
Winter Wine Fest

Come Sip, Shop and Support NHF Nevada. We will have food, wine and awesome silent auction items for you to bid on.

VIP Experience Tickets $75 - Includes early entrance to the event at 6 pm, access to premium wines and high-end hors o'doeuvres in the VIP Tasting Room, custom Winter Wine Fest wine glass, and two raffle entries. Limited to 30 tickets.

Standard Tickets $35 in advance, $30 at the door - Includes two hours of tasting a variety of wines and appetizers on the heated patio at Brio.

The Winter Wine Fest is a wine tasting event hosted by the Nevada Chapter of the National Hemophilia Foundation (501c3 Nonprofit Organization Tax ID 13-5641857) to raise funds for the Nevada bleeding disorders community. 100% of the proceeds stay in Nevada and support our programs and services improving the quality of life and care of families living with bleeding disorders. With over 200 attendees, the Winter Wine Fest is a fun opportunity to sip and socialize, while supporting a great cause.

Refunds cannot be processed after January 24th.