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Over the course of two days, you will have the opportunity to learn and network with other families through small group programs. With a combination of expert programs and peer led talks, the Fall Fam Jam is designed to help you build your network and knowledge – helping you achieve a higher quality of life and care.
This is a great occasion to talk one on one with the speakers, peers, and connect with important resources that empower you as a member of the Bleeding Disorders Community. Come out and be the best advocate for yourself and family. We will have several sessions to choose from as well as provided meals.
Families attending one or more of the sessions will receive tickets to the Nevada Chapter’s Fall Family Outing: Haunted Harvest at the Springs Preserve on Sunday, October 21 7-9pm
Each session is limited to 25 people.
HTCNV - Trunk or Treat
FOR PEOPLE WITH HEMOPHILIA A WITH OR WITHOUT FACTOR VIII INHIBITORS
Join us for an educational session on HEMLIBRA®
What is HEMLIBRA?
HEMLIBRA is a prescription medicine used for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children, ages newborn and older, with hemophilia A with or without factor VIII inhibitors.
Arrival Time 5:00pm
Start Time 5:30pm
Resilience: Growing Through Life's Changes
Managing stress is an important aspect of our every-day lives. This presentation will discuss some of the common causes of stress and provide some examples of how to better adapt and manage adversity. Through some interactive and fun activities, you will explore what it means to be Resilient, learn some associated skills as well as tips and tools for living a healthy lifestyle.
You are cordially invited to a Men’s event with CSL Behring’s Gettin in the Game Athlete Perry Parker
Please join us for our Men’s Event with Perry Parker at one of Las Vegas’s exciting new attractions TOPGOLF. The event will include time in TOPGOLF’s plush hitting Bays and an informal golf clinic with Perry Parker, a PGA professional. Perry has a bleeding disorder and will lead skill-building activities, explain how he found the strength to overcome the challenges of his disorder to achieve his dream, and educate participants on the importance of leading a happy, healthy and active lifestyle. Food and Beverage will be served. This event is geared towards males aged 16 and older with either a bleeding disorder or a family member of someone with a bleeding disorder.
Bikes in Your Blood
Where: Ride starts and finishes at Equestrian Park South, 1298 Equestrian Dr, Henderson, NV 89015
Route: River Mountains Loop Trail
Date: Saturday, November 17th, 2018
Time: 7 AM check-in, 8 AM ride begins
Bikes in Your Blood is a Charity Bike Ride that offers riders at any fitness level the opportunity to participate. The start/finish line will be from Equestrian Park South in Henderson, NV and the course will span the River Mountains Loop trail in Lake Mead National Recreation Area. The River Mountains Loop Trail is Nevada’s first endeavor of its kind.This non-motorized trail provides Nevada residents and out-of-state visitors with an outdoor recreation area offering scenic views, plentiful wildlife and the vast beauty only the Mojave Desert can offer.
The 4 routes for Bikes in Your Blood were designed for riders of all experience levels. Beginner cyclists will enjoy a short scenic ride while experienced cyclists will find a longer more challenging ride on River Mountains Loop. Bikes and helmets not provided. All routes run along cycling friendly roads.
Please join us for a day of fun, education, food and holiday cheer! There will be a photo booth and a visit with Santa! We have some fabulous speakers that will be presenting topics in both English and Spanish. We will also have our annual raffle with proceeds benefiting our Summer Camp Fund.
• Space is limited – only people living in the state of Nevada with a bleeding disorder and their immediate families, living in the same household, are invited to attend.
• Table Centerpiece Contest! We are asking each family to bring a holiday themed centerpiece for the table. One centerpiece will be selected and the designer will receive a $50 gift card.
• We are in need of raffle items and donated presents or gift cards valued at $10 or more. If you can donate please contact us at firstname.lastname@example.org.